2016 Disbursements

Your Donations At Work

From August 1, 2015 to July 31, 2016 the Children’s Hospital Foundation of Saskatchewan distributed $2,177,587 for current maternal and pediatric needs in the 2016 fiscal year.  In addition, $100,000 was designated for a research chair position in the pediatric department for exception emerging researchers and research needs.

Education

RQHR

MEDEC – Metabolic & Diabetes Education Centre
“Diabetes in Children and Teens: A Survival Guide” DVDs and pamphlets are given to families of newly diagnosed children and teens with type 1 diabetes. These resources are also shared with teachers and schools who work with children with diabetes. The nurses find it a valuable resource to accompany their teaching and feel it is well received and appreciated by families and teachers. The booklet and DVD help parents with a newly diagnosed child and their child, if old enough, better understand type 1 diabetes. It helps illustrate how children can live well with the diagnosis and do well at school. Easy to follow, it provides a good introduction to families before providing more encompassing education and knowledge needed to self-manage diabetes. It also reinforces that good communication with a child’s school can help both parents and teachers provide a safe environment for the child.

SHR

Transport Team Training Conference
Annual Airborne Neonatal & Pediatric Transport Conference lectures on the innovative approaches and latest advances in transport from experts around the world.

Visiting Lectureship Program
This two-year commitment provides unique opportunities for child health practitioners, research scholars and educators to visit the Department of Pediatrics.  The program will invite nine visiting lectures each year and be thematically integrated and optimization for child health as a fundamental aim.

PICU
American Society for Apheresis (ASFA) Conference
Tissue plasma exchange is a new therapy offered through the Pediatric Intensive Care Unit and is the only place to offer the treatment in Saskatchewan.  The Foundation disbursed funds for the Spectra Optia Apheresis Machine, which allows this program to function, and then further educate team leaders and users.

CAPHC Membership
The Canadian Association of Pediatric Health Centres (CAPHC) is a recognized leader and advocate for advancing the improvement of healthcare for Canada’s children and youth.

Maternal
Family Centered Maternity Care Conference with Celeste Phillips
A four-day conference with a comprehensive education session for the entire Maternal Department.  Funding went towards bringing in educator Celeste Phillips, who presented a model of care and helped develop a clear action plan to educate and engage staff on how they can play a role in the transformation.

University of Saskatchewan
Pediatric UpToDate Subscription Renewal
UpToDate is a trusted source for evidence-based clinical information for clinicians across the world. UpToDate features recommendations that are reviewed, fact-checked, and graded by a global peer-review network. With the enhancement of team communication and team spaces, the information library will have the best in medical references available at their fingertips.  The annual subscriptions are available to approximately 30 physicians.

Community
The Loft Program
Families in need receive food and gift hampers to help throughout the holiday season.

Equipment

SHR

NICU
Cerebral Oximeter
Cerebral oximeters provide clinicians with a non-invasive “window” into the body to measure blood oxygenation in the microvasculature, allowing surgical teams to detect and correct problems that can lead to further complications.

NICU
Cuddle Cots
Thanks to Cuddle Cots, grieving parents in Saskatchewan who have suffered the loss of a baby will have a little more time to say goodbye. Cuddle Cots are medical equipment that act like a refrigerated bassinet and allow babies to stay with their parents in the room after they have passed.

PEDS
Intellivue Monitors
Patient monitoring spans care environments, patient acuity levels, and clinical requirements.

Maternal
Anesthesia Portable Ultrasound
Pregnant women are sometimes subject to multiple painful needle punctures when attempts are made to establish intravenous.  Anesthesia Portable Ultrasound machines overcome those challenges by visualizing the veins that are trying to be accessed.

Northern Medical Services
Hospira Plum A+ Intravenous Pumps & Tubing (4)
These IV Pumps greatly enhance the care provided to Saskatchewan’s large pediatric population with fluid resuscitation/maintenance fluids as well as IV medication administration.  The IV Pumps were needed for the communities of Pelican Narrows, Deschambault Lake & Southend, offering primary care services including emergency treatment.

Northern Medical Services
Chemistry & Hematology Analyzer
Easy and fully automated which accurately produces results of the testing requirements for chemistry and hematology.  Works in conjunction with the InTouch Express.

North Medical Services
In Touch Express (2)
Saskatchewan has a large percentage of pediatric patients living in rural/remote communities.  Access therefore becomes a major issue for our acute/critically ill children.  The Intouch Express is used as a mobile remote device to optimize pediatric inter-facility transportation.  Improving access through a remote presence device enables the local team to perform diagnostic tests utilizing efficient and compact equipment. This tool is a transformative solution for addressing a deep and ongoing gap in health care access in communities across Saskatchewan.

Maternal

Lactate meter and strips

Brings lactate testing directly to patient’s bedside to test blood.

PEDS
Therapeutic Pediatric Equipment
Enables participation in activities of daily living to promote and enable independence.  The biggest struggle is providing treatment to these types of referrals due to the severe lack of equipment available for rehabilitation.

Maternal
Fetal Monitors
Used during labour to monitor fetal heartbeat and maternal uterine contractions.  Current monitors do not allow the transducers to be in water, while these newer models do.  With these new monitors, women in labor who require monitoring can be in the shower or tub, which many women find helpful.

PICU
WOW Cart
A workstation on wheels (WOW) allows clinicians the mobility and flexibility they need while charting. Currently, manual collection of and organizing patient data causes unnecessary delays and errors.  WOW Carts allow nurse and clinicians to have real-time access to patient info in a convenient mobile platform.

Pediatric Outpatients
Smart Monitor – Pediatric Sleep Disorder
To diagnose obstructive sleep apnea and have breathing assessed by machines that monitor oxygen saturation, airflow at the nose, chest and abdomen motion, heart rate and movement.  The new units will be used in Saskatoon while older monitors will expand programming in Prince Albert.

PEDS
Sleep Chairs (3)
New sleep chairs required in patient rooms for spouse to stay with family.

NICU
Neofeed Enteral Syringe Pump
The NeoFeed neonatal enteral syringe pump helps healthcare workers avoid the danger of IV misconnections in the Neonatal Intensive Care Unit.  The NeoFeed pump functions with specialty syringes designed specifically for pediatric enteral feeding.

Patient Care

ABI Outreach
ABI Youth Camp Grant
A camp for children who have sustained a moderate to severe acquired brain injury.  The purpose is to provide education on ABI to the youth and to teach them how to overcome challenges to live successfully.

Air Canada Transport Program

Designated Funds Enhancements
NICU/PICU/PEDS and Child Life designated funds enhancements are used to fund items such as glide rockers, toys, books, computer equipment, and more.

Comfort Kits
Gift bags from the Inspired Giving Program at the Children’s Hospital Jeans & Jewels Gala are provided to children in Saskatoon, Regina and Prince Albert pediatric departments, offering comfort and positive distraction while young patients are staying in the hospital.

Teammates for Kids
Child Life Zone
Funds raised at the Forever for the Kids events in Saskatoon and Regina were disbursed to Garth Brook’s Teammates for Kids Foundation to design and build a Child Life Zone in Children’s Hospital of Saskatchewan. The Child Life Zone, a first in Canada, will be a state-of-the-art therapeutic play area for pediatric patients and their parents. The Teammates for Kids Foundation and Garth Brooks covered the overhead costs of both events, ensuring that 100% of the money raised went directly to the Child Life Zone.

PICU
Junior SIM Doll
The benefits and new standards in education require the department to train in a simulation environment.  This includes the SIMNewB Simulator Manikin and SimPad System with clinical accessory kit.

RQHR & SHR
Playroom Grants
Funds used to enhance the pediatric playroom in Saskatoon and Regina.

Research

“Research Chair” – $100,000 restricted allocated for the initiation of a Pediatric Research Chair.

Dr. Huntsman, Assoc. Professor & Division Head, Pediatric Neurology
“Cannabidiol in Children with Refractory Epileptic Encephalopathy:  A Phase 1 Open Label Dose Escalation Study”

Epileptic Encephalopathy Syndromes seizures are very difficult to control despite patients being placed on multiple medications.  Since treatments often cause significant side effects there is a need to find therapies that are effective and better tolerated for children.

There has been significant media interest regarding medical marijuana products for the treatment of seizures in children.  Hemp oil products with high cannabidiol (CBD) and low tetrahydrocannabinol (THC) ratios have been reported to provide seizure relief and cognitive improvement in children who take them.  Parents have asked for these products to treat their children but due to lack of clinical information, physicians are often reluctant to prescribe.  There is an urgent need to advance research on this treatment option.  This study is to assess the safety and tolerability of a Health Canada approved high CBD: low THC product in children with refractor Epileptic Encephalopathy.  Children enrolled will be monitored for quality of life and seizure frequency.

Dr. Alan Rosenberg – Head, Division of Pediatrics, Research & Division of Pediatric Rheumatology – University of Saskatchewan
“The Biologic Basis of Co-existent Uveitis and Arthritis in Children: Towards Early Detection, Targeted Treatment and Prevention”

Arthritis is among the most common chronic disabling diseases of childhood affecting an estimated 1 in 1000 Canadian children.  60% of children with arthritis will continue to have arthritis as adults.  In addition to inflammation of their joints children can also experience uveitis, a form of eye inflammation, which can result in serious deterioration of eyesight potentially leading to permanent vision loss.  The reasons why are unknown and it is challenging for the doctor to accurately predict the onset of uveitis.

This study will explore the connection between uveitis and arthritis.  Investigation of the structure of collagen, an important protein found in the joint and the eye which is altered by certain other proteins in a way that promotes inflammation at these sites.  Using the information discovered in animals, testing on children will occur to predict outcomes.

Determining the mechanisms that explain the associations, more specific treatments and insight into possible causes of the condition will be found.

Determining the mechanisms that explain the associations, more specific treatments and insight into possible causes of the condition will be found.

Dr. Hassan Vatanparast & Dr. Alan Rosenberg – Head, Division of Pediatrics & College of Pharmacy/Nutrition – University of Saskatchewan
“The Impact of Vitamin D on Disease Activity in Children with Juvenile Idiopathic Arthritis”

Juvenile idiopathic arthritis (JIA; idiopathic means the cause is unknown) is one of the most common chronic diseases, and an important cause of disability in Canadian children.  In Saskatchewan it is estimated that 1 in 1000 children have JIA.  Causes are not understood but likely include both genetic and environmental influences.  One factor that may play a role in influencing the occurrence and outcomes of JIA is vitamin D.

Vitamin D is reported to play a role in the reduction of disease activity in autoimmune diseases including JIA by suppressing inflammation which consequently reduces the symptoms and signs.  80% of children with JIA have low levels of vitamin D.  No Canadian study has investigated the relationship between the two.  The aim is to understand the association between the two.  Patients with the onset of JIA from multiple centres were enrolled in the Biologically Based Outcome Predictors in JIA cohort study.  Existing data will be used to explore the association between vitamin D status and measures of disease activity and explore a potential genetic variability in vitamin D receptors in JIA patients.

This study will be the first to investigate both the genetic and environmental role that vitamin D plays in controlling JIA.  Through this study, there is hope to have data for specific guidelines for vitamin D in management of JIA patients.

Dr. Darryl Adamko – College of Medicine – University of Saskatchewan
“Improved Diagnosis of Pediatric Asthma:  Metabolomic Analysis of Urine”

Asthma is the most frequent chronic disease of children and the number one reason for pediatric emergency admissions in Canadian hospitals.  The lung tissues of children with asthma become inflamed and treatment often requires anti-inflammatory drugs like inhaled or oral corticosteroids.  Corticosteroids can have a number of unwanted side-effects and deciding when to treat or increase the dose is difficult for doctors to predict.  This renders control of the asthma less than optimal.  To measure inflammation, one could use a biopsy however this is potentially dangerous and painful.  Other less invasive teste are available, but they are less accurate and not suited for the average doctor’s office.   Overall there is an urgent need for a better test.  Developing a novel method to measure changes in children with asthma using a urine sample is instrumental.  The lung tissue damage from asthma creates unique markers in the body that can be measured in the urine.  It is believed that measuring these biomarkers in the urine will reflect changes in the disease.  It is suspect that the amount of these urine markers will decrease after the treatment of the diseases.  Ultimately, hope is that the urine test will not only diagnose asthma better than available techniques but will also help to better adjust the amount of medicine a child needs.

Dr Krista Baerg – Department of Pediatrics – University of Saskatchewan
“The Chronic Pain Network”

Chronic pain is common and results in high health utilization and lost productivity.  The network will establish provincial patient registries and a national clinical trials collaborative.  The project will develop the infrastructure and momentum required to progress chronic pain research in Saskatchewan.  The opportunity to participate in clinical trials will enable patients to access new treatments while treating those patient appropriately and safety.  Many partnerships will exist nationally, provincially, within health regions and universities. This is a national collaborative spearheaded by internationally respected pain researchers.
Marta Erlandson, PhD, Assistant Professor – College of Kinesiology. “A Pilot Health Intervention Study for Children with Congenital Heart Defects:  CHAMPS – Children’s Healthy Heart Camp in Saskatchewan”

Congenital Heart defects (CHD) are a leading type of birth defect effecting approximately 2000 Saskatchewan kids.  Survival rates of these children have steadily increased with upwards of 85% now living into adulthood.  These children are less physically active than healthy peers and at a greater risk of mental health issues.  Very little is known and there is no comprehensive chronic disease management (CDM) program to address their health needs.  This research will explore the physical and mental health of children with CHD and pilot a supervised CDM program.  30 Saskatchewan children aged 7-13 will participate in a 1 week CHAMPS camp that promotes activity, healthy habits and psychological well- being.  Body composition, cardiovascular and psychological, and health anxiety will be measured.  These then will be compared to 30 healthy children.  The project will be the first of its kind to focus on specific aspects of physical and psychological health of children with CHD and to pilot new, innovative programming tailored to their health concerns.  This project is a vital first step in the development of a national CDM program to optimize growth, physical development, and mental health of children with CHD while minimizing future chronic disease risk factors.

Every Dollar Helps

Thank you for supporting Saskatchewan kids, moms, and families with your gift.

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