2019 Disbursements

Your Donations At Work

Jim Pattison Children’s Hospital Foundation disbursed $24,394,011 in urgent maternal and pediatric needs between August 1, 2018, and July 31, 2019. In addition, $100,000 was designated for a research chair position in the pediatric department for exceptional emerging researchers and research needs.

Equipment/Technology

PROVINCIAL

Maternal
BabyLeo Incubator
Sometimes babies need help to grow and thrive, especially if they were born too early. An incubator is used to provide a newborn baby the environmental conditions they need to get the best start. The BabyLeo Incubator keeps our littlest patients warm so they can grow.

SASKATOON & AREA

Maternal
C-MAC Video Laryngoscope
Laryngoscopes are used to give healthcare providers a view of the larynx and are often used in emergency situations when a patient needs help breathing. The C-MAC is a small, flexible and portable laryngoscope that is perfect for emergency, trauma and difficult intubations, and makes it easier for doctors to see what’s happening.

Pediatric Intensive Care Unit
C-MAC Video Laryngoscope & Accessories
Laryngoscopes are used to give healthcare providers a view of the larynx and are often used in emergency situations when a patient needs help breathing. The C-MAC is a small, flexible and portable laryngoscope that is perfect for emergency, trauma and difficult intubations, and makes it easier for doctors to see what’s happening.

Fellowship

Dr. Lo
Pediatric Anesthesiology Fellowship
A Pediatric Anesthesia Fellowship is an education and training program in all aspects of pediatric anesthesia. This includes pediatric pain management and perioperative anesthetic care for neonates, infants, children and adolescents. Once this fellowship is complete, Dr. Lo will be returning to Saskatchewan to establish a full-time Anesthesiology practice for a minimum of one-year.

Dr. Streilein
Arizona Centre for Integrative Medicine
Integrative Medicine takes into account the whole person, including all aspects of their lifestyle, emphasizing the relationship between healthcare provider and the patient.

Patient Care

PROVINCIAL

Community
LGBTQ+ Rainbow Coffee Club
A weekly program for LGBTQ+ youth and their families and allies in Humboldt, SK. The group is a place for youth and their allies to come together in a safe and supportive environment.

SASKATOON & AREA

General Pediatrics
Maternal Infant Child Youth Research Network (MICYRN)|
The Maternal Infant Child and Youth Research Network (MICYRN) is a federal not-for-profit, charitable organization that builds capacity for high quality applied health research. It links 20 maternal and child health organizations based at academic health centres in Canada; is affiliated with more than 20 practice-based research networks; provides support to new and emerging teams, and has established strong national and international partnerships. MICYRN is unique in the world for this type of collaborative engagement. Working together in coordinated fashion enables the sharing of innovations and reduces duplication of effort and resource use, which means more funds, can be spent on doing research.

Pediatric Intensive Care Unit
Cardiohelp Lung Support System (Saskatoon Radiothon 2018)
This critical piece of equipment will help save the lives of children suffering from respiratory failure who have not responded to standard treatments. It is extremely useful in cases such as severe influenza A (H1N1) pneumonia, which often results in children needing to be ventilated, suffering from severely low oxygen, and spending time in PICU. Influenza A has devastatingly resulted in the deaths of several Saskatchewan children this flu season, and the need for the Cardiohelp machine has never been higher.

Jim Pattison Children’s Hospital
Hospital Opening Swag for Staff
In preparation for the opening of Jim Pattison Children’s Hospital, t-shirts and logoed water bottles were purchased for the staff of the new hospital.

Community
Holiday Giving for the Loft
Air Canada Transport Program
Hospital Enrichment
Healthy Mom Healthy Baby

Professional Development

Alvin Buckwold Child Development Program
8th International Conference on Fetal Alcohol Spectrum Disorder
Assessments and diagnosis of Fetal Alcohol Spectrum Disorder require an in-depth understanding of prenatal brain development, early childhood development, and factors that can impact development. In 2016, new diagnostic criteria were released, requiring a more specific assessment in terms of executive functioning, attention and concentration, as well as childhood mental health. Attendance at this conference provided an efficient way to reconnect with the leading researchers in the area and review the most up-to-date and relevant research.

Pediatric Dysphagia Symposium
Nutritional adequacy and safety with eating and drinking are key elements of short and long-term outcomes in children. It is critical that members of the Alvin Buckwold Child Development Program Feeding Team know the benefits and risks of treatment options to help guide families and local teams to make the best decisions for their unique children.

Innovations Conference
This annual conference hosted by the Regina Therapeutic Recreation Association allows attendees the opportunity to ensure they are up to date with recreation therapy interventions, practices and research. The theme of this year’s Innovations Conference is Leisure Education & The Steps to Connect Program.

Care of the Hospitalized Child Conference (2)
The Care of the Hospitalized Child Conference addresses best practices in the care of this unique patient population. It allows attendees to identify early warning signs of clinical deterioration in the hospitalized child, fine-tune assessment skills, nursing care and understanding of treatment strategies for acutely and chronically ill children.

General Pediatrics
3rd International Conference on Pediatric Acquired Brain Injury
This conference cover a comprehensive cross-section of pediatric brain injury topics, including rehabilitation, family support, evidence-based research and mTBI and concussions in pediatrics. This conference is especially relevant to the Acquired Brain Injury Outreach Program, as this program focuses on facilitating the best quality of life following brain injury across all domains.

Canadian Assoc. of Genetic Counsellors Annual Conference (2)
This conference provides updates on new genetic testing technology which can be used to provide a diagnosis for families for whom we have not found a diagnosis, use of social media in practice, new areas of practice such as pharmacogenetics and discussion on the ethics of the emerging technology. The program provides genetic counsellors from across the country with up-to-date and relevant education on new findings in genetics that help provide better care to families.

Pediatric Feeding & Swallowing Clinic
The Approach to Feeding program is an effective way to address problematic feeding behaviors in a variety of settings and populations. The SOS Approach uses a transdisciplinary team approach which assesses the “whole child”: organ systems, muscles, development, sensory processing, oral-motor skills, learning, behavior and cognition, nutrition and the environment. The goal of SOS is to establish healthy eating patterns in the pediatric population by supporting families to introduce a variety of foods from all food groups.

Ketogenic Diet Conference
The Ketogenic Diet is a diet therapy treatment that is scientifically proven as an effective treatment for seizures, particularly in children. The Ketogenic Diet Conference is designed as a training course and networking opportunity for healthcare professionals administering the ketogenic diet to patients with epilepsy and other disorders where the ketogenic diet is indicated.

Closing the Gap Conference (2)
Closing the Gap Conference: Continuing Education in Alternative and Augmentative Communication allows attendees to network with other professionals, increase knowledge in this specialty area of practice and bring home information and strategies that can be shared with coworkers. Closing the Gap is one of the largest, most respected AAC conferences in North America.

Grand Rounds – Visiting Lecturer Program (Yr 2 of 3)
The Visiting Lecturer Program will consist of 9 – 12 visiting speakers per year from across Canada and the United States. Lecturers will be identified based on their clinical, research, and advocacy expertise, and will be vetted by the Grant Rounds committee and/or other Departmental members.

SHA Request
CAPHC and CPPC
This annual conference is the largest annual meeting of the child and youth healthcare provider community in Canada. It engages broad stakeholder groups including Hospital CEOs, Chief Financial Officers, Senior Administrators, Physicians, Clinical Directors, Multidisciplinary Practitioners, Policy Makers, Researchers, Families, Youth and many others.

CAPWHN Conference (3)
The Canadian Association of Perinatal and Women’s Health Nurses (CAPWHN) represents women’s health, obstetric and newborn nurses from across Canada. CAPWHN aims to promote excellence in nursing practice, leadership, education and research in the areas of perinatal and women’s health care.

Indigenous Children’s Health Conference (2)
This conference was designed for community members, researchers, academics and clinicians. It is the only conference dedicated to the health and well-being of First Nations, Inuit, Métis, American Indian, Alaska Native and other Indigenous children and youth in North America and around the world.

PMI North Saskatchewan Professional Development Day
The PMI North Saskatchewan Professional Development Day is a full day conference with world-class keynote speakers. Session topics cover technical, leadership, and strategic and business management topics.

Jim Pattison Children’s Hospital Capital Disbursements

Opening in late 2019, the new Jim Pattison Children’s Hospital will offer state-of-the-art equipment and facilities for children, mothers, and families from across our province. Centrally located on the University of Saskatchewan campus in Saskatoon, our new children’s hospital will offer neonatal intensive care, pediatric intensive care, and general pediatrics, pediatric emergency and ambulatory services. Maternal services will include labour and delivery, antepartum, and postpartum. The 176-bed facility will provide the highest quality of care and put Saskatchewan at the forefront of research and innovation.

Research

Research Chair
$100,000 restricted allocated for the initiation of a Pediatric Research Chair.

“CHAMPS – Activity Monitoring Program”
Dr. Tim Bradley, Department of Pediatrics
Congenital heart defects are one of the leading types of birth anomaly. Affected children can have abnormal arterial growth and development before and after birth producing increased stiffness of the arterial wall, a well-established risk factor for early onset of adult cardiovascular diseases like heart attacks and strokes. These children can also be of smaller stature, less physically active and at risk for mental health issues. Currently, no chronic disease management program addresses these health needs of the approximately 2400 affected children across Saskatchewan.
Building on previous work funded by Jim Pattison Children’s Hospital Foundation, more affected children are being recruited and their cardiovascular health, body composition, physical activity levels and psychological health will be monitored over the next 3 years. Baseline comprehensive assessments are performed in conjunction with an annual summer camp and compared to data from healthy age- and sex-matched children. Baseline testing includes basic heart, blood vessel and exercise measures to assess cardiovascular health; scans to assess body composition, bone and muscle health; interviews and accelerometry to assess physical activity levels; and questionnaires to assess psychological health. Annual re-testing will then be performed in conjunction with regular clinical follow-up visits. Our long-term goals are to identify which of these children will most benefit from exercise and lifestyle interventions as they transition into adulthood.
This project will be the first of its kind to provide comprehensive long-term monitoring of the physical and psychological health of these children. This new and innovative program tailored to each individual affected child’s health concerns, could then be used as a model to develop a Canada-wide chronic disease management program for children with congenital heart defects to optimize their growth, psychological and long-term cardiovascular health.

“The Chronic Pain Network”
Dr. Krista Baerg, Department of Pediatrics, University of Saskatchewan
Chronic pain is common and results in high healthcare utilization and lost productivity. This network will establish provincial patient registries and national clinical trials collaborative. The project will develop the infrastructure and momentum required to progress chronic pain research in Saskatchewan. The opportunity to participate in clinical trials will enable patients to access new treatments while treating those patients appropriately and safety. Many partnerships will exist nationally, provincially, within health regions and universities. This is a national collaborative spearheaded by internationally respected pain researchers.

“Connecting to Care: Uniting Patients, Families and Practitioners Through a Plan of Care Portal”
Dr. Tracie Risling, University of Saskatchewan
Hospital stays can be very overwhelming for both children and their family caregivers. Surroundings are unfamiliar; there are many members of the care team and a lot of information to try to remember. Research has shown that having access to information can help patients and caregivers feel more engaged in care, be more active in decision-making, and in general feel more satisfied with the hospital experience. Electronic patient portals are a new way to provide this essential information directly to patients or caregivers. These portals can be accessed on a tablet or other mobile device and can be very effective in influencing engagement and communication with the care team. Research has been done on patient portals with adult participants but the use of this technology for pediatric patients is very new.

This project will give families an opportunity to work in collaboration with the research team, healthcare practitioners, and software developers to create a new Plan of Care Portal (POCP) designed specifically for the Children’s Hospital of Saskatchewan. The research project is planned for three years, and will be done in three phases. Family caregivers and healthcare practitioners will contribute their ideas to the design of the POCP in the first phase of the project. Next, technology experts in the health region and project software developers will work to build and test the POCP. In the final phase, the research team will partner with nurses and family caregivers to evaluate the POCP over a six-month pilot period in the acute care setting. Select nurses will have tablet devices to offer the caregivers of patients under their care. If they choose to participate, the caregivers will use the portal and answer survey questions about the experience. Data logged during portal use will also help complete the evaluation.

“Early Recognition of Neonatal HIE Through Urine Metabolomics”
Dr. Salah Almubarak, Department of Pediatrics
Hypoxic ischemic encephalopathy (HIE) can be devastating in newborns and has the potential to cause serious long-term disability. Hence, early recognition and introduction of appropriate treatment is crucial. Halting of HIE progression is important in preventing long-term complications. Early application of therapeutic hypothermia has become a standard of care especially within the first 6 hours of life; however, not all cases of neonates with HIE are recognized at an early stage despite intensive clinical monitoring. Often clinical evidence of HIE does not manifest in the first 24 hours of life when interventions are needed. As such, there are too many infants that go on to have severe brain injury (e.g. cerebral palsy). We need a better screening tool to guide earlier diagnosis and prevention of HIE progression. Metabolomics is the study of small molecules created by cell activity. In disease states, cells produce different chemical substances, which can be measured in a human body. Researchers aim to discover novel biological markers by using urine metabolomic analysis and comparing it to neonatal Electroencephalogram (EEG), in order to recognize HIE at early stage from birth and introduce therapeutic hypothermia to improve long-term neonatal outcome.

“Indigenous Women’s Perspective for Secure Birth Places”
Dr. Angela Bowen, University of Saskatchewan
Indigenous women’s perspective for culturally secure birthing practices is a participatory research project that engages women in an Indigenous Women’s Birth Network to increase our understanding of culturally secure birth. The network will support women sharing their individual stories about their baby’s birth, participating in a talking circle, interpreting the study findings, and developing a photo/voice learning resource to increase the cultural competence and humility of care providers involved in maternity care. The project aims to enhance the maternal healthcare of Indigenous women that will in turn impact the health of the child and growing family.

“PreGain Bone Health Study”
Dr. Munier Nour, Department of Pediatrics
Anorexia nervosa is a condition of severe low body weight. It often occurs in adolescence at a critical time for bone development. Adolescent females with anorexia nervosa are well known to be at risk for bone loss and bone fragility (osteoporosis). This is a result of a number of hormonal changes that occur in response to inadequate nutritional intake. Estrogen deficiency is thought to be a major contributor to the bone loss. Unfortunately, most studies that have attempted to replace estrogen in pill format in those with anorexia have not shown benefits to bone health. Recent developments to replace estrogen through topical application (transdermal) have shown promising results for bone health. Currently, no proven treatment or prevention therapy has been approved for optimizing bone health in young females with anorexia and new, effective strategies are desperately needed.

This study will assess bone health in 24 Saskatchewan adolescent females aged 12-20 years old with anorexia nervosa. Half will receive the topical estrogen. All participants will have their bone health assessed at the beginning of the study and at four other times over a 24-month period. Participants will fill out questionnaires and complete a bone density scan, spine x-rays, blood tests and new state of the art high resolution bone imaging techniques.

Through this study, we will gain a greater understanding of bone health in girls with anorexia. Additionally, this study may provide evidence for future therapies.

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