Carson

Carson

Eight-year-old Carson has a condition so rare and complex that you’ve probably never heard of it. But the effects are all too real.

As a baby, Carson’s skin was exceptionally soft and he would get a cut simply by running a finger over the seam of an inflatable toy. He didn’t learn to walk until he was 18 months old, and while most kids fall down and get up while learning, just a small tumble would require stiches for Carson. It was all highly unusual but a dermatologist found the problem.

“After needing so many stiches while learning how to walk, I realized that Carson did not have normal skin and he might need to see a specialist,” says Carson’s mom, Carla. “The dermatologist said he hadn’t seen this type of condition in 20 years.”

At just 23 months old, the Saskatoon boy was diagnosed with a genetic connective tissue disorder called Ehlers Danlos syndrome. The condition causes fragility in the skin’s collagen and patients often have complications with hyper-mobility, easy bruising and tearing of the skin, detached retinas, dislocations and joint pain.

Carson can’t play contact sports or rough house with his friends, yet he never asks why he has to have a skin condition while other kids don’t. Because of sore joints, he can’t walk for long periods and his aorta is enlarged in two areas preventing him from repetitive heavy lifting. For Carson, bruising can turn into bursitis with the bruise falling off leaving an open wound that can take up to six months to heal.

“With Carson not being able to do things like other kids, I try to make every day fun for him,” says Carla. “He’s so excited about his new go-kart with pedals because he can pedal without the chance of falling and tearing his skin.”

Despite Carson’s struggles, he has found low-impact alternatives to staying active and healthy. He loves showing off his flexibility and is currently in level five swimming, which is easy on his joints. A true champion, he is always happy and never complains about what he can’t do. Thank-you for raising funds to help kids like Carson get the best care possible!

Every Dollar Helps

Thank you for supporting Saskatchewan kids, moms, and families with your gift.

Jason Ooms
MOORE JOHNSON
Liz Gurr
COLLEEN NIEBRUGGE
K & J. W. Trucking Ltd.
BO SUN
dasdas dasd
Avery Linton Legacy Foundation
Group Medical Services
Janine Platana
Crossroads Chiropractic
Melissa Blough
Great-West Life Assurance Company
Shannon Fehr
Darryl Adamko
Denise Black
Chloe Hawryluk
Mike Pawluski
Susan Pederson
LINDA G PEAGAM
Gregg Sauter
Sophie Houchen
Tomina Ritco
Brian McKinnon
Colton Carey
Lumsden and District Lions Club
Daniel Olivier Bukowski
Tracy Danielson
Amanda Anderson
Kerpan Farms Inc